A year ago, we were devastated about Mr. being essentially stuck in a nursing home until…well, we didn’t know when, how we’d do it, or if he would even be able to come home. The reality of the situation was overwhelming. And frankly, a blur when (I) we think back to that time.
I was desperate to figure out how to get him home. The planning included a ramp into the house and stairlifts inside. The stairlift parts were backordered, delaying for an unknown timeframe. Finding someone to build the ramp was also a challenge. He also needed a wheelchair. First, he had to be evaluated for one (a visual cut meant the power wheelchair was not safe). They measured him for a wheelchair that could recline due to hypotensive moments. Our insurance had to be queried to authorize it, it had to be custom-made, and finally delivered to him. We started that process in August, and he didn’t get the chair until November 28th. The things to do kept multiplying and were spaced out in random order.
Meanwhile, I was desperate to help figure out how to get his medications regulated or prescribed so he could do therapy, prevent another stroke, and feel like himself. Small wishes, big goals. So many mysteries to solve.
The medication mystery (misery) remains a major challenge to this day. We’ve discovered he has so many allergies to the normal “this works for me/other patients” med lists. Post stroke, his electrolytes are extremely sensitive. The list of concerns makes my vision go blurry.
Side effects range from rashes, dizziness, pusher’s syndrome, high blood pressure, low blood pressure, hallucinations, and balance issues. And weird mushrooms (as he calls them) appear randomly on his skin and in his armpit. Like a mystery crow appearing in the shadows (Do you see the crow shadow?).
Blood pressure is always a concern for anyone post-stroke. Imagine sudden drops in blood pressure (up to a 70-point drop) accompanied by waves of dizziness, while not being able to feel your entire left side. I can’t even imagine it. But I witnessed it and fought for him and said, “Nope, not that med, it does not work!” Each one would drop out of the scene.
All the while, he could find me standing on his left side as much as possible. Listening to all professionals saying that he had to scan left to recover. I’d say to him to trigger a scan, “I’m on your left.” He might’ve never seen the left if he had remained so incapacitated due to the medications. A couple of ER visits later, I ran into at least a few doctors along the way who agreed with me when I said, “That drug is pure evil.” I imagine their specialty isolated them from knowing what the other doctors were prescribing and why, and if it would affect their attempts. But…still…it didn’t help with recovery, making it very frustrating.
His blood pressure remained high, even after returning home, which was concerning. At least he wasn’t bed-bound and could participate in therapy and get moving on his wishes for recovery. As he started to get stronger and began feeling more sensation and activation on his left side, we discovered somewhere along the journey, he had cracked a tooth. An abscess indicated it needed to be removed. 3 different dental office visits later, I finally found a surgeon who could take it out, but the day we went to have it taken out, the doctor said we couldn’t.
Hmm…we found out that the oral surgeon can’t remove a tooth when the blood pressure is over 200/100. Imagine that? White coat syndrome and medication interactions, keeping Mr.’s blood pressure high, weren’t a good mix for getting a tooth pulled. So for the past few months, we’ve been on a mission to figure out how to lower his BP to a safe zone. And discovered additional medications that he’s allergic to.
Fast forward to today, and damn, I wish I knew what I know now, and maybe things would be different. I’m sure the doctors think I’m a hovering/meddling wife – how dare I challenge them? They look at me cockeyed when I’d say, “Isn’t it possible that his sodium levels being low aren’t okay, or ‘normal low for him’, and instead are caused by the medications?” “Don’t add another blood pressure-lowering medication when he’s maxed out on 3 already; something else must be wrong!” Finally, 3 doctors later, his neurologist listened to our concerns and said, “Yes, Oxcarbazepine (taken since last fall) can definitely lower sodium and affect his BP/electrolytes, let’s try a different medication that is normally more tolerable.”
“Mushrooms hold the secrets to the universe, to life on our planet, and the core of our being.” – Paul Stamets
So, 8 months post starting the big “O” med, we said bye-bye to the drug that was always hard to pronounce and secretly the culprit all along. Hopefully, we have found the sweet spot with a seizure medication (Lamotrigine ER) that won’t drop his sodium, raise his BP, and will keep the seizures at bay. Moral of that side story: don’t negate the negative effects of medications. They could be so subtle and hold you back from recovery. Unfortunately, the seizures aren’t under control yet. His epileptic status rears up randomly. We spent the late afternoon yesterday in the ER after he had a grand mal seizure, sitting in his wheelchair in our kitchen. Seizures suck.
It still makes me mad that no one would listen to me, but the vindication and good riddance to the drug(s) along the way that do make his life miserable does feel good to me, and to him.
“Mushrooms are the elves of the plant world. Come nighttime they’re nowhere to be found, but in the morning their round little houses pop up as if they’d been there for ages.” – Emily Dickson
Meanwhile, the other ‘wait until insurance or the referral process works’ things have kept us busy. We’re waiting on an AFO to help him with left foot drop to help with his walking in PT. The neuro-ophthalmologist provided an e-consult after we finally got Mr. to the eye clinic for the field test and the Esterman field test for driving. Both confirmed he has a complete left homonymous hemianopia/visual cut. His eyesight outside of the visual cut is 20/20, and when he compensates by looking to the left, he can see 70% of his visual field. Which, by the way, in the state of WI, qualifies to test for a limited driver’s license. 🙄🤯 For now, we’ll stick to working with him to learn to drive his power wheelchair purchased from a consignment sale. This visual cut confirmation news is sad for us, but we remind ourselves that it is his new baseline, and the brain is amazing. He’s overcome so much, so we’re not going to let this beat the fight to recovery and walk/drive someday out of us/him.
“Nothing is permanent. You are not stuck. Transform into something new.” – Flint Rehab
He’s going to PT and OT each week, and he’s getting stronger and stronger. This week, he stood up out of his wheelchair all by himself. He surprises his therapists with the things he can suddenly do. I’m right there with them, cheering him on and his accomplishments. He is initiating many of the leg/foot/arm/hand movements we’ve been trying to get him to do since he had the stroke. Other than med interactions/allergies, he is healthier at home. We’re ignoring the comments and looks we get with the undertone of “normally after 6 months or a year post stroke…blah, blah, blah.”
How have I endured all the thinking, planning, and stressing, you ask? Many a night, I looked forward to not thinking about the mysteries of life post-stroke by escaping into the mysteries written by Dan Antion. It’s been fun seeing Dan grow as an author over the years. And fun to pick out my favorite characters in the books. Rascal Todd reminded me to keep investigating and pay attention as the story unfolds. Cheers and a raised toast to Dan for his successes! 🍻🥂
A true test of what we’ve learned with our at-home therapy and moments of independence came about when, out of the blue, after 14 months of not catching any bugs, I was hit HARD by some weird bug. I had to call in reinforcements (aka, his parents) until our daughters could come and help me take care of Mr., while I slept the dizziness/puking away. 48 hours later, I recovered and smiled, seeing that he had found more ways to be independent and determined to keep on recovering. Taught me that sometimes letting other people care for him is good for him and me.
I smile, thinking back to last fall. He couldn’t see the TV in his NH room, and now he can watch the Packer game! Glad they won this game.
And he can find me on the left by turning his head to the left.
The past two weeks, we shared a huge milestone. Ever since his return home in December, I’ve had to ask someone to come to our home to stay with him. I felt trapped in a sense, the longer it has been, that I couldn’t just run a short errand. That seemed like a crazy idea. But…at some point, he should be able to stay home alone, right? He’s 64! Finally, we took the leap of faith and said, “Let’s do it!” I was able to leave him home alone while I went grocery shopping. It takes 17 minutes to drive there. 30 minutes to shop. 17 minutes to drive back home. I texted him when I got to the store, and he/Siri replied. I texted him when I got to checkout, he/Siri replied. I texted him when I got back in the car to head home, he/Siri replied. I drove in the driveway and cried tears of joy…moments of independence are finally taking hold as the recovery journey continues. I, of course, texted all my support friends/family to tell them of the milestone moment – I was one proud caregiver who felt a bit of healing, too, for myself.
PS – Dearest Blogging Buddies, I hope you are well, that your summer heading into fall (or the season you’re in right now) is bringing you adventures, mysteries to solve, and love to surround you as you win battles in your day-to-day lives.
Hi Shelley, I’m always so happy to read about Mr’s progress and what’s going on with you. You are so dedicated and courageous! Good for you for being his staunch advocate! Are you still working through all of this? God’s blessings on all of you. ❤️🙏
Hi Terri, I’m always happy to hear from you too. Thanks so much for the encouragement. I’ve been away from commenting on blogs for SO long I’m terribly rusty. I read your Sunday Still for today and enjoyed seeing the progress and construction photos, nice work! I smiled remembering how my hubby used to be able to do all the fun projects that your hubby did/does. I know you know how important it is to treasure those moments. Have a wonderful break and exciting adventures for the next couple of weeks. PS – I thought of you the other day when I slipped on my garden clogs 🙂
Yours (collectively) has been an incredible journey, Shelley. I am so proud of you for being the advocate he needs to deal with the doctors. Someone has t question them when things don’t seem right. Someone has to stand up for him, and you are doing a wonderful job filling that role. You really are a hero.
I am proud and happy to see my books on that pile. I appreciate your comments and I’m thrilled that you like my stubborn little character. I think you have many traits in common, except you are real and she’s fiction. You stand tall and strong and that is helping to win this battle.
I wish you both continued good health. I hope the Mr. continues to improve and you reach those goals. You remain in our prayers. Thank you so much for the update.
Thank you, Dan, your support and encouragement all along has meant so much to us. There are many days where I’d think back to those words and find hope and a shot of perseverance to get through the day.
I’ve enjoyed your books too – I’ve been hooked on the stories since I read your first book the summer I said goodbye to Copper and found reasons to smile again reading the books as each new one came out. Rascal is a fun character, I’ll take it as a compliment that I have a stubborn streak that is beneficial. 😉 PS – Bonkers is fun too! And…I see you have another book in the works!!! WooHoo!!! Congrats.
Thank you again, we appreciate the well wishes for continued good health and progress – we gladly accept all wishes and hold them near and dear to our hearts.
Hi Shelley, it’s good to see you back! I am proud of you, you are a wonderful caretaker and wife. Mr is so very lucky to have you in his life! Big virtual hugs for you both, I wish that I could do something to help! Be well! 🙏🏻❤️
Hi John, thank you for the warm welcome back and the cheering on of our efforts. We feel very fortunate to have each other – Mr.’s determination makes it easier to be his advocate. You’re helping more than you know by your words of encouragement and cyber hugs. Thanks for staying in touch with us. Take care of yourself too!
Aw you’re welcome! I’m glad to help! ❤️❤️☺️
It was nice to get an update on how things are going for you and Mr.
You are both such inspirations on the power of persistence and hope. I’m sending you all my best wishes!
Michelle, thank you so much for your support and encouragement. I’ve read your comments and felt the warmth you’re sending our way. My blogging buddies make Mr. smile too. We’re lucky to have you in our extended ‘family & friends’ group. I hope all is well with you too!
Hi – nice to get the updates and I am reviewing Poetic Justice this coming week, and it was nice to see your books! I also had a few copies of the brain that cahnges itself and really liked that book – so good!
glad that “O” med is gone.
And just for educational purposes, here are a few things to consider
And I know a few folks who use swedish bitters to prevent seizures and balance the entire body.
I use Nature’s Way brand – and right now my bottle is Swedish bitters with ginger – and it is really great at providing a sense of balance. So just think (pray) about getting a bottle of biters because a drop or two goes a long way – (and I do have a time from 2020 when I used bitters and it rescued me)
also, my mother and a few of her friends (one lady who had a heart transplant) put a granule of celtic salt under the tongue and it helps their BP.
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and not sure what is going on with the tooth – but if possible – open a capsule of activated charcoal and let is sit on the gum area and tooth. It will draw out toxins, metals, and help provide healing for the gum area. I would do this twice a day – and the little bit of activated charcoal that goes under the tongue will (can) provide a tiny bit of lymph support.
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sending a virtual hug your way
Hi Yvette – thank you for your words of support and hot tips. I thought of you when I took activated charcoal when I had the stomach bug. It’s amazing stuff. I didn’t think of using it on his tooth – I should do that!
I’ll have to check out your review of Dan’s Poetic Justice book. I bet it’ll be an interesting take as you like poetry too and Willow’s contribution to the book. I really enjoyed the book, hope you did too.
I’ve not heard (no surprise) of any natural remedies for seizures. In fact, we’ve heard very little about them, other than “with the extensive injury to his brain, seizures are expected.” 🙄😏😣 Same with the blood pressure. My blood boils when they simply quickly suggest adding another med. Yeah, I’m glad to see the “O” med drop off the list. It’s been tricky to wean him off of it. Took 6 weeks! The side effects he had from it are maddening too. Especially the higher BP! UGH.
I’ll have to get some celtic salt. We do use Redmond’s.
I thought of you and wondered what you’d suggest often when I’ve struggled with why this happened to Mr.
Thank you so much for sharing your thoughts and for checking in! Hugs to you too!!!
Happy to read that things are better and you figured the meds out. My husband is in a memory care home. Not sure where things are going but he will not get better.
Hi Alice, thank you for the encouragement. It’s been quite the battle to figure out medications. I’ve found it nice when the therapists notice the changes and also mention it to the doctors. It’s frustrating for them when a patient can’t participate and make their efforts show progress.
Aww…I’m so sorry, my heart goes out to you and your husband. I hope the memory care home is helpful and comforting for him and you. It is SO hard when the memory fails and the decline continues. You’re in my thoughts as I send cyber hugs your way.
Was thinking about you a few days ago and wondered how you were going Shelley.
You are doing well and so is Mr thankfully. Medications are such a hard thing to get right. It is a pity that medical professionals seem to know what you need when you know your own body better than they do. Or as in your case your husbands.
I am glad you have support when you need it.
Going shopping and leaving him by himself was a big step and you both did well.
I am proud of what you two have achieved.
Love and support form Australia 🦘👍🏼🥰
Hi Brian – thank you for checking in and for thinking about us. We appreciate your words of encouragement. I agree, it’s a pity that formularies and “go-to” drugs are prescribed so freely and that side-effects aren’t taken as seriously as they are. Hubby has never been good with medications so this IS very frustrating for him.
Our kids and his parents have been life-savers for us all along. Seeing progress, even if small moments, keeps us going. I never thought that just going grocery shopping would be such a big accomplishment, but it is. Mr. did all the cooking and shopping, bless his heart he’s ‘surviving’ on my efforts. 🤣😉 By the way, the photo of the books in this post was the last on my card for August. I didn’t realize it was the end of August until this morning when I looked at the calendar! Time flies when you’re busy, I guess.
Thank you again, we appreciate the words of encouragement, love, and support from Australia. PS – our daughter and her husband ventured over that way this past spring – they landed in Sydney for a brief layover. She brought me back a Whittaker’s Extra Dark Chocolate bar………….WOW, that was so delicious. I wondered if it’s a favorite of yours or not? We’re sending cyber hugs and smiles from our home to yours!
I had forgotten about your shopper/chef. By now you are well into the swing of things 👩🏼🍳 The medication I was prescribed after my one and only seizure, sodium valproate, doesn’t have bad side effects. The ones that affects me are weight gain 🙄 and short term memory loss 🤔 I don’t know if that would be a suitable substitute. Whittaker’s Extra Dark Chocolate is a Aotearoa/New Zealand product and is 🤤
Hoping all goes extra well Shelley. You stay strong and look after yourself too. We all need you to be around.
Thanks for joining in Last on the Card 😁
❤️
Yes, I’m in the swing of things with frequent repeating of the recipes I can make. LOL! Thanks for the recommendation. Ah, yes, I had to look it up, Depakote. Tried it ✅ and he had extreme hallucinations and a drop in Potassium/Sodium – it is a common drug that usually works well. Guess he’s a mystery that we’re still trying to solve. I’m glad it works for you! It appears to not be fun to have any seizure. Stay away from weight gain and short term memory loss!! We heard back from the lab work from ER lab work…more puzzle pieces for his neurologist to evaluate tomorrow when the office is open again. One of these trials we’ll find something that works I hope.
Thank you for encouraging us on and for me to take care of myself too. I do want to be around to join in on the fun stuff in life, like blogging with blogging buddies again! Keep smiling! 🤗😍
I am working hard on the weight gain but it’s a yo-yo effect it seems. I asked my Dr did he think I had epilepsy after having one and only seizure 5 years ago. All he would say is you’re being treated for it. If I go off the meds, I can’t drive for 12 months and that is not an option. Plus I almost died so that scares me not to take the meds.The memory thing is annoying especially when I could remember stuff all the time, even the stuff that is totally useless to remember 😂
Cooking the same thing isn’t too bad. After a while you’ll get into doing slight modifications, like adding something extra, a vegetable or rice instead of pasta, toss in an olive etc
If only they had medications that didn’t have so many side effects! Yikes, you almost died…I didn’t know that! Definitely don’t go off the meds – we need you around!!! Memory issues are not fun to deal with, no matter how small. Guess they’re better than a seizure though. It’s nice you have a sense of humor about it. I often feel that I can’t remember why I walked into a room that I just left and wanted to return to. 🤣😆
I’ll feel like a real chef if I get to that level of a creative stage 🤣😂😁
Thank you for sharing your epilepsy journey with me (us). 🤗
Medication side effects can be (almost) as bad as the thing they’re trying to cure. Great that Mr. has such a strong advocate, although I know it takes a lot to keep pushing back. I’m happy to hear your collective progress. It takes a lot to keep slogging through the system most days. Progress not perfection, as we say around here.
Thank you, Laurel, I’ve been touched by all of your comments along the way on this journey. Well said about the medications. I sometimes wonder if the doctors had to try out the drugs themselves if they’d really prescribe them. 🤔😆 I also imagine if no one mentions the side effects how do they know they aren’t working as intended? The slogging through the system weeds is way more than I ever thought was needed. I haven’t even mentioned retirement, SS, and Medicare, disability, oh my, THAT’S a BP raising experience. Excellent reminder to pay attention to progress, that is a saving grace for us. Thank you again for your support – I hope all is well with you and yours – cyber hugs to you 🤗
I can’t imagine what all you have been through and commend you on your strength and resilience. I am praying for both of you and hope brighter days will come. Enjoy the cooler weather and the beauty and resilience of mushrooms. You show the strength of character given by God and I hope you find peace each day.
Thank you so much for your words of encouragement and prayers for perseverance/resilience. We are enjoying the cooler (clearer sky) days. We love the fall season and have been getting outside as much as possible – especially before the white stuff shows up! I wish you peace and joy too, thank you for sharing your thoughts.
It’s been a long journey this past 14 months, but always remember just how far Mister has come and how much you have grown together as a team. I know you both cheer on every little victory and I’m sorry you have setbacks like you did with this latest seizure. You are a wonderful caregiver and stronger than you ever believed you were Shelley; always remember that.
Thank you so much Linda, you’ve been here to cheer me (us) on from day one. I’m eternally grateful for your support, prayers, candles, and cheers to keep going. The seizures have been a side story all their own on top of everything else. Hopefully, we’re on the path to finding a medication that will work well for him. If you have another prayer in your pocket 😉 we sure will appreciate it. I’ve missed you – hugs to you dear blogging buddy! I hope you are doing well and you’re finding walking weather that has been enjoyable!
I have you both in my daily prayers Shelley and I hope the prayers and the candles have been beneficial on this road to recovery. It is difficult enough dealing with the aftermath of a severe stroke without complications from meds causing severe reactions. You both are not quitters and will tough this out together … I’ve told you before that in the years from now, you will look back on this trying period of your lives and wonder how the heck you ever got through it. Walking became blissful again with the cooler weather the last ten days. The heat, humidity, rain and wildfire smoke wreaked havoc with my walking regimen all Summer and I will try to recoup miles to make my goal, but if not, I’ll hope for the best and maybe next year Mother Nature will get rid of the bee in her bonnet. 🙂 Take care Shelley. {{{ hugs }}}
Thank you so much for keeping us in your daily prayers, we appreciate you so much. In looking back, we have come so far, it’s a good reminder for us to keep going!
I feel the frustration you’ve had with weather this summer. We missed out in going outside so much due to all those factors too. I hope fall lasts a bit longer than normal so we all can enjoy it. It’s so cold this morning I turned on the heat! That’s a normal no-no for us, we try to go until October, but, Mr. gets cold easier now…
Thank you again, Linda! Hugs to you too!!
I’ve never turned the heat on in August before, but I did. Fingers crossed you and Mister can get out on the deck and enjoy some nice Fall weather before the snow flies, even if you bundle up in your sweat suits. Take care Shelley!
Our furnace is still running and extra blankets on the bed! LOL. Yes, I hope we can get outside lots more before the snow flies. You too – take care, stay warm, and enjoy the nice days!
I will do just that Shelley. P.S. The Lions said with no snow a’flyin’ at Lambeau Field for Sunday’s game, the Lions will win. Hmm. Mister may have doubts about that. 🙂
I told your story to my husband this week. He looked so concerned as I explained all the things you and your husband have gone through. I tried to explain ‘left neglect’ and he didn’t get it. His oldest brother (now in his 80s) didn’t have a left eye since birth when something happened at the hospital. My husband thought it would be something like that, that it was hard to see to the left, and I had to explain it was different, than your husband’s brain doesn’t let your husband know there’s anything at all to the left…and he has to keep being reminded. Anyway, I wanted you to know that my husband now is thinking about you guys, and that it did him good to take a moment and get out of his own head (he has kidney cancer that has spread) for a tiny bit.
I think you have made remarkable strides toward giving him more independence which I know is the goal for you both. You two are quite a team!
Hi Dawn, thank you so much for your comments and concerns throughout this journey. I’ve read them all and appreciate your concerns/care more than I’ve expressed! I’m sorry to hear about your husband’s cancer. Cancer isn’t fun at all. 😢 It’s nice to read that he took an interest in Mr.’s story. One of Mr.’s steady thoughts, “For some reason, this happened to me and if I can help someone else in the process, that must be why.” You’re right, it is hard for others to understand what left neglect is. It manifests often, and we have to be careful he doesn’t run into things or have his arm/leg get injured while he moves about. Just getting dressed each day amazes me how he doesn’t always remember that side needs help. He’ll even feel stuff on that side and describe it but think it’s on his right. In a year, we do see Mr. trying to remember on his own. It takes subtler reminders, for example, instead of telling him that he missed food on his plate, he asked me to just say, “Maybe check out 8 o’clock on your plate to see if you’re done or not.” He can usually scan the plate and find the last bite. If I don’t do that, he feels like he’s eaten everything. It isn’t that he can see it, he has to move his head/eyes to a position where he can see the objects from his right vision. It’s hard to explain left visual cut too. Even the experts don’t know how to help other than saying, “Keep scanning to the left.” From our perspective, that helps some, but doesn’t seem to be the cure all. The visual cut is very pronounced, and according to the neuro ophthalmologist there is baseline damage due to the clot/surgery. We’re hopeful that the baseline means we have a starting point to recover from at some point. We’re thinking about prism glasses via a low vision specialist (once we figure out how to find one and go there).
Thank you for noticing our strides – we’re glad we recorded where we were a year ago so we can see the progress. Yes, independence is the goal. Mr. was extremely independent, didn’t understand others who weren’t.
Thank you again, we appreciate your cheers to keep on keeping on! I hope you and your husband’s journey has days where there is peace, laughter, joy, and love to treasure. (PS…we have our frustrating moments, and have said, “I’m sorry SO much!”) I’m sending Hugs to you!
Shelley…never, never ever stop being an advocate for your husband’s medical needs. Keep asking those questions at doctor visits. I have a friend who researches and asks questions about her own issues and she has eventually found doctors who listen to her. She has taught me that doing the same makes a difference in a person’s health care and it really does.
I’m so glad that the Mister is doing better and fighting to be more mobile and independent. I hope you have a doctor that will also fight for the right medications for him. Sending hugs and love to you both!
Thank you for your words of encouragement, Mary! It’s great to hear from you. That’s good to know the efforts of your friend worked well – it gives me hope that I’m on the right track to support Mr.
We’re thankful for the progress Mr. has made – it’s been an adventure to say the least! We appreciate your hugs and love more than words can say!
PS – it’s been fun to see your flowers and the kitty adventures. Hugs to you and to your furry pals!
Mary, thank you for the encouragement and support for advocating for Mr. Your friend is wise. I bet she keeps her doctors on their toes! I’m inspired by your story of what she does and how it helped.
Hugs and love to you too!
After taking an August blog break I’m catching up with everyone. I’m amazed by how far the Mister has come, am sure your diligence had much to do with it. Prescription meds are tricky even when you’re in the bloom of health, let alone trying to find a new way to live in balance with your own body’s chemistry. I wish you well, am glad you went to the grocery leaving the Mister on his own. This is progress.
Hi Ally – thanks so much for stopping by after your blogging break. I think of you often. You’re so right, medications are tricky. We’re still on the journey of discovery and have taken additional twists and turns. We’re grateful for the progress and for encouragement from blogging buddies! I hope you’re doing well and ready for winter fun. Enjoy the sunny days and stay warm!
The last few years I somehow dropped away from my WP reader time. I find my way back today and see how much has been happening for you and the Mr! This has been a long battle. As someone who’s fought through a few of my own battles, having someone with you to advocate makes all the difference in the world. You are amazing, Shelley, and congratulations to you both on that latest milestone.
Hi Laura, thank you for this encouraging message and for stopping by after your reader break. Blogging breaks happen for many reasons. Glad you found your way back here to share your thoughts!
My daughter was diagnosed with Epilepsy. The neurologist was very confident about the diagnosis . My Daughter had an EEG (no idea if it showed anything; we were tired and may have misunderstood what he said about that). MRI was negative for problems. For the past 4 months or so, I have seen weekly occurrences, making strange faces (this involved cheek twitching and lip quivering). We did not realize it could be a serious problem until she had an obvious seizure (simple partial) last week. What is troubling about my daughter’s condition is that we have seen many daytime seizures, and that recently the seizures seem to cluster together. No idea if there are seizures occurring at night.We were given a prescription for Kapra, but are still weighing the risk / rewards of giving the medication to a toddler. After returning from the hospital, my daughter experienced a round of vomiting lasting from 3 AM to 11 AM, followed by additional vomiting the following morning at around 2 AM. Nothing makes sense then. She has not had an appetite, is drinking fine, and otherwise appears healthy. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website called Herbalife cure. I just followed the email address of Doctor Joseph that was shared on these testimonies; I got lucky when I got a reply from Dr. Joseph. I followed his instruction, used Herbal Medicine in less than 2 months, and my daughter’s seizures reduced drastically. Within a period of 5 months, my daughter was cured. I went back to my neurologist, where my daughter checked up and marked epilepsy free. contact him via email : joseph.healinghome@gmail.com. or whatsApp at wa.me/2347059186346